Data sovereignty: A review
New data-driven technologies yield benefits and potentials, but also confront different
agents and stakeholders with challenges in retaining control over their data. Our goal in this …
agents and stakeholders with challenges in retaining control over their data. Our goal in this …
MaxSynBio: avenues towards creating cells from the bottom up
A large German research consortium mainly within the Max Planck Society (“MaxSynBio”)
was formed to investigate living systems from a fundamental perspective. The research …
was formed to investigate living systems from a fundamental perspective. The research …
[PDF][PDF] Data donations as exercises of sovereignty
We propose that the notion of individual sovereignty encompasses more than having the
power to exclude others from one's personal space. Instead, sovereignty is realized at least …
power to exclude others from one's personal space. Instead, sovereignty is realized at least …
[HTML][HTML] Own data? Ethical reflections on data ownership
In discourses on digitization and the data economy, it is often claimed that data subjects
shall be owners of their data. In this paper, we provide a problem diagnosis for such calls for …
shall be owners of their data. In this paper, we provide a problem diagnosis for such calls for …
Primer on an ethics of AI-based decision support systems in the clinic
Making good decisions in extremely complex and difficult processes and situations has
always been both a key task as well as a challenge in the clinic and has led to a large …
always been both a key task as well as a challenge in the clinic and has led to a large …
[HTML][HTML] Playing God? Synthetic biology as a theological and ethical challenge
P Dabrock - Systems and synthetic biology, 2009 - Springer
In the ethical debate over synthetic biology the formula “playing god” is widely used in order
to attack this new branch of biotechnology. The article analyses, contextualizes and criticises …
to attack this new branch of biotechnology. The article analyses, contextualizes and criticises …
[PDF][PDF] Sovereignty and data sharing
In this paper, we characterize the notion of data sovereignty as a normative reference point
for information and communication technology (ICT) governance. We explain why in our …
for information and communication technology (ICT) governance. We explain why in our …
[HTML][HTML] Evaluation of a clinical decision support system for detection of patients at risk after kidney transplantation
R Roller, M Mayrdorfer, W Duettmann… - Frontiers in Public …, 2022 - frontiersin.org
Patient care after kidney transplantation requires integration of complex information to make
informed decisions on risk constellations. Many machine learning models have been …
informed decisions on risk constellations. Many machine learning models have been …
[HTML][HTML] Towards an ethics for the healthcare metaverse
M Tretter, D Samhammer, OTT Tabea… - Journal of …, 2023 - dergipark.org.tr
Harnessing the metaverse for medical and healthcare purposes is currently heralded as the
“next frontier in healthcare.” However, to ensure the “amazing possibilities” of the so-called …
“next frontier in healthcare.” However, to ensure the “amazing possibilities” of the so-called …
[HTML][HTML] “Nothing works without the doctor:” Physicians' perception of clinical decision-making and artificial intelligence
Artificial intelligence driven decision support systems (AI-DSS) have the potential to help
physicians analyze data and facilitate the search for a correct diagnosis or suitable …
physicians analyze data and facilitate the search for a correct diagnosis or suitable …