The care perspective and autonomy

MA Verkerk - Medicine, Health Care and Philosophy, 2001 - Springer
In this article I wish to show how care ethics puts forward a fundamental critique on the ideal
of independency in human life without thereby discounting autonomy as a moral value …

[HTML][HTML] Is there a duty to recontact in light of new genetic technologies? A systematic review of the literature

E Otten, M Plantinga, E Birnie, MA Verkerk… - Genetics in …, 2015 - nature.com
Purpose: With rapid advances in genetic technologies, new genetic information becomes
available much faster today than just a few years ago. This has raised questions about …

Parental experience at the end-of-life in children with cancer:'preservation'and 'letting go'in relation to loss

MC Kars, MHF Grypdonck, MC de Korte-Verhoef… - Supportive Care in …, 2011 - Springer
Purpose For children with incurable cancer death usually is anticipated and preceded by a
phase of palliative care. Despite recognition that parents have difficulty adapting to a …

[HTML][HTML] Population-based preconception carrier screening: how potential users from the general population view a test for 50 serious diseases

M Plantinga, E Birnie, KM Abbott, RJ Sinke… - European Journal of …, 2016 - nature.com
With the increased international focus on personalized health care and preventive medicine,
next-generation sequencing (NGS) has substantially expanded the options for carrier …

Reflective professionalism: interpreting CanMEDS'“professionalism”

MA Verkerk, MJ De Bree, MJE Mourits - Journal of medical ethics, 2007 - jme.bmj.com
Residency training in the Netherlands is to be restructured over the coming years. To this
end a general competence profile for medical specialists has been introduced. This profile is …

Where families and healthcare meet

MA Verkerk, H Lindemann, J McLaughlin… - Journal of Medical …, 2015 - jme.bmj.com
Recent developments in professional healthcare pose moral problems that standard
bioethics cannot even identify as problems, but that are fully visible when redefined as …

Expanded carrier screening for autosomal recessive conditions in health care: Arguments for a couple‐based approach and examination of couples' views

M Plantinga, E Birnie, J Schuurmans… - Prenatal …, 2019 - Wiley Online Library
Background Expanded carrier screening (ECS) is aimed at detecting carrier states for
autosomal recessive (AR) or X‐linked conditions in couples from the general population …

[HTML][HTML] Expanded carrier screening: what determines intended participation and can this be influenced by message framing and narrative information?

JS Voorwinden, AH Buitenhuis, E Birnie… - European Journal of …, 2017 - nature.com
Next-generation sequencing enabled us to create a population-based expanded carrier
screening (ECS) test that simultaneously tests for 50 serious autosomal recessive diseases …

Theoretical resources for a globalised bioethics

MA Verkerk, H Lindemann - Journal of Medical Ethics, 2011 - jme.bmj.com
In an age of global capitalism, pandemics, far-flung biobanks, multinational drug trials and
telemedicine it is impossible for bioethicists to ignore the global dimensions of their field …

Two women with multiple sclerosis and their caregivers: Conflicting normative expectations

TA Abma, B Oeseburg, GAM Widdershoven… - Nursing …, 2005 - journals.sagepub.com
It is not uncommon that nurses are unable to meet the normative expectations of chronically
ill patients. The purpose of this article is to describe and illustrate Walker's expressive …