Improving access to medicines: empowering patients in the quest to improve treatment for rare lethal diseases

L Halpin, J Savulescu, K Talbot, M Turner… - Journal of medical …, 2015 - jme.bmj.com
In 2011 Les Halpin was diagnosed with motor neuron disease (MND), also known as
amyotrophic lateral sclerosis (ALS). Since his diagnosis, Les has been committed to …