What research participants want to know about genetic research results: the impact of “genetic exceptionalism”

M Ruiz-Canela, JI Valle-Mansilla… - Journal of Empirical …, 2011 - journals.sagepub.com
The disclosure of individual genetic results has generated an ongoing debate about which
rules should be followed. We aimed to identify factors related to research participants' …

Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the USA and Spain

M Ruiz-Canela, JI Valle-Mansilla… - Journal of Medical …, 2009 - jme.bmj.com
Introduction: The use of human samples in genomic research has increased ethical debate
about informed consent (IC) requirements and the information that subjects should receive …

Patients' attitudes to informed consent for genomic research with donated samples

JI Valle-Mansilla, M Ruiz-Canela… - Cancer …, 2010 - Taylor & Francis
This international self-administered survey describes the attitudes of 279 patients, who had
previously donated samples, regarding informed consent for future genomic research on …

.= Deficiencias en las Hojas de Información de Estudios Genómicos.

M Sáenz de Tejada López… - … oficial de la …, 2010 - repository.library.georgetown.edu
whenever biological samples are requested for genomic research consent from donors is
always needed. in this process, appropriate information offered to participants is essential …

[HTML][HTML] Colitis microscópica en pacientes con diarrea crónica

JI Valle-Mansilla, R León-Barúa… - Revista de …, 2002 - scielo.org.pe
Se ha sugerido recientemente que hay asociación entre gastroenteritis infecciosa y
síndrome de intestino irritable con diarrea crónica; y marcada similitud entre la lesión …

[CITATION][C] Raymond De Vries, Aimee E. Stanczyk, Kerry A. Ryan, and Scott YH Kim Christian M. Simon, Elizabeth Newbury, and Jamie L'Heureux

CR Breitkopf, M Loza, K Vincent, T Moench… - 2011 - search.proquest.com
AN INTERNATIONAL JOURNAL Page 1 IN THIS ISSUE The Obligation to Share Data … or Not
to Share A Framework for Assessing the Quality of Democratic Deliberation: Enhancing …

[CITATION][C] UNDERSTANDING ThE PERCEPTIONS OF POTENTIAl RESEARCh POPUlATIONS

R De Vries, AE Stanczyk, KA Ryan, SYH Kim… - search.proquest.com
CONTENTS Volume 6 Issue 3 Page 1 CONTENTS Volume 6 Issue 3 September 2011 1
Raymond De Vries, Aimee E. Stanczyk, Kerry A. Ryan, and Scott YH Kim Christian M. Simon …

[CITATION][C] Medicina:¿ Carrera científica o humanista?

JI Valle Mansilla - Diagnóstico (Perú), 2003 - pesquisa.bvsalud.org
Medicina: ¿Carrera científica o humanista? | Diagnóstico (Perú);42(1): 43-46, ene.-feb. 2003. |
LILACS | LIPECS loading Conteúdo principal 1 Busca 2 Rodapé 3 +A A -A Alto contraste Portal …