Demographic data of participants in the observed decision events and dropout reasons
| Patients | Family | ||||
| Observed | Interviewed | Observed | Interviewed | ||
| N | 45 | 3 | N | 42 | 13 |
| Female/male, N | 27/19 | 1/2 | Female/male, N | 25/17 | 6/7 |
| Age mean (range) | 61 (19–94) | – | Relation to patient | ||
| Daughter/son | 23 | 6 | |||
| Reasons for not being interviewed | 15 | Parent | 6 | 2 | |
| Death | 2 | Spouse/partner | 16 | 4 | |
| Declined participation in hospital/declined later or lost contact | 4/8 | Daughter-in-law | 3 | 1 | |
| Missed to be approached by MS or hospital research nurse | 13 | Sibling/niece/grandchild | 7 | – | |
| Reasons for not being interviewed | |||||
| Declined | 6 | ||||
| Not asked due to distress | 7 | ||||
| Not available/no response to initial information | 9 | ||||
| Other family interviewed instead | 7 | ||||
| Clinicians | |||||
| Total N=80 | Consultant | Registrar | Junior doctor | Outreach nurse* | |
| Female/male, N | 25/55 | 6/26 | 10/25 | 3/3 | 6/1 |
| Age mean (range) | 42 (25–60) | 46 (34–60) | 34 (27–52) | 31 (25–40) | 44 (28–60) |
| Years experience in current specialty, mean (range) | 8 (0.1–22) | 10.0 (0.5–22) | 4 (0.1–20) | 2 (0.2–4) | 8 (0.3–15) |
| Years experience since graduation, mean (range) | 17 (1–41) | 23 (10–36) | 10 (4–29) | 4 (1–12) | 44 (28–60) |
| Specialty | |||||
| Intensive care | 55 | 23 | 19 | 0 | 7 |
| Medical specialties | 15 | 7 | 8 | 6 | 0 |
| Surgical specialties | 4 | 1 | 3 | 0 | 0 |
| Acute/emergency medicine | 6 | 1 | 5 | 0 | 0 |
*Critical care outreach nurses, supporting ward nurses and doctors who are caring for acutely ill inpatients.