Results in the loss of patient privacy. Lacks oversight regarding veracity of claims made by campaigners and the use of crowdfunded money. Privileges those with large social networks, access to and dexterity with technology and reinforces inequalities associated with gender, class and race. Perpetuates inequitable healthcare systems and reduces the impetus for reform.
| Charlie’s parents decided to disclose his personal and medical information, as they were legally entitled to do. Funds were ultimately used to establish The Charlie Gard Foundation rather than pay for the therapeutic intervention for which they were raised. Charlie’s success is partially attributable to significant media attention, support of public figures and his emotionally appealing narrative. The Gard family fundraised to address a perceived lack in treatment provision within the National Health Service.
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