TableĀ 3

Varying disclosure policies for the return of secondary findings from a selection of major biobanks and genetic cohort studies

No return of secondary genetic findingsWill return actionable genetic findings (with opt-in consent)Undecided/ongoing decisionNo publicly disclosed policy on website*
UK Biobank29 Genomics England23 eMERGE30 Icelandic Biobank (DeCode)
Million Veteran Program31 ASPREE Healthy Ageing Biobank4 US Precision Medicine Initiative32 BioMe (Mount Sinai)
NINDS, National Institute of Neurological Disorders and Stroke Repository,33 Geisinger MyCode34 Kaiser Permanente Research Program on Genes, Environment, and Health35 Welldery
BioVU (Vanderbilt University)36 Genomes2People (G2P) MedSeq Project24 Framingham Heart Study37
NUgene (Northwestern University)38
  • *As of August 2016. ASPREE, ASPirin in Reducing Events in the Elderly.