Table 1

Motivation for participation (n=90)

Responsen (%)Sample quote
Direct personal benefit54 (60.0)'My biggest motivation? I guess my biggest motivation is I would like to get better’ (S7)
Altruistic motivation7 (7.8)‘No, I just … I just felt I should do something to help the next guy down the road’ (S19)
Dual motivation (direct personal benefit and altruistic motivation)28 (31.1)‘Well, an improvement in my condition…And, you know, to help further the research in Parkinson's’ (S3)
Other*1 (1.1)Subject stressed entering study mainly because her husband wanted her to
  • *This subject was not included in subsequent analyses by motivation.