Comparison of subjects’ understanding of purpose of research by motivation and doctor status
| Motivation | Doctor status | |||
|---|---|---|---|---|
| Responses (n (%)) | Direct personal benefit n=54 | Altruism/dual n=35 | Own doctor n=39 | Other n=49 |
| Is the primary goal to benefit the subjects participating in the study, or future PD patients?* | ||||
| 1) Primarily intended to help subjects participating in study | 5 (9.3) | 0 (0) | 0 (0) | 5 (10.2) |
| 2) Primarily intended to help future PD patients | 28 (51.9) | 20 (57.1) | 25 (64.1) | 24 (49.0) |
| 3) Primarily intended to advance science/gain knowledge | 6 (11.1) | 1 (2.9) | 3 (7.7) | 3 (6.1) |
| 4) Primarily intended to benefit the sponsor | 1 (1.9) | 0 (0) | 0 (0) | 1 (2.0) |
| 1 and 2 | 10 (18.5) | 12 (34.3) | 9 (23.1) | 12 (24.5) |
| 2 and 3 | 2 (3.7) | 2 (5.7) | 1 (2.6) | 3 (6.1) |
| Other | 2 (3.7) | 0 (0) | 1 (2.6) | 1 (2.0) |
*Fisher's exact test (primarily intended to help subjects vs all other responses): p=0.14 for direct personal benefit versus altruism/dual; p=0.05 for own doctor versus other.
PD, Parkinson's disease.