Preferences elicited using the tool (intervention group only; n = 75)
| Response | n (%) | |
|---|---|---|
| *Numbers are larger than for the intervention group (where n = 40) because 35 patients had the tool administered but subsequently became too ill to complete the study. | ||
| Preferences for information about the illness and treatment | Preferred not to know | 2 (2.7) |
| Preferred limited information | 21 (28.0) | |
| Preferred to know all the details | 52 (69.3) | |
| Previous experience of information about the illness | Too little | 14 (18.7) |
| About right | 61 (81.3) | |
| Too much | 0 (0.0) | |
| Preference for family/carer information | Yes, may discuss | 71 (94.7) |
| No, prefer not | 4 (5.3) | |
| Specific family members not to be given information | Named | 12 (16.0) |
| None named | 63 (84.0) | |
| Specific family members to be present for information | Named | 46 (61.3) |
| None named | 29 (38.7) | |
| Advance directive or living will | Already made | 7 (9.3) |
| Wanted to make | 1 (1.3) | |
| Not wanted | 43 (57.4) | |
| Not asked | 24 (32.0) | |
| Decision-making preferences | Doctors to decide | 13 (17.3) |
| Combined decision | 27 (36.0) | |
| Self or family to decide | 9 (12.0) | |
| Other preference | 11 (14.7) | |
| Not asked | 15 (20.0) | |