PT  - JOURNAL ARTICLE
AU  - Effy Vayena
AU  - Roger Brownsword
AU  - Sarah Jane Edwards
AU  - Bastian Greshake
AU  - Jeffrey P Kahn
AU  - Navjyot Ladher
AU  - Jonathan Montgomery
AU  - Daniel O'Connor
AU  - Onora O'Neill
AU  - Martin P Richards
AU  - Annette Rid
AU  - Mark Sheehan
AU  - Paul Wicks
AU  - John Tasioulas
TI  - Research led by participants: a new social contract for a new kind of research
AID  - 10.1136/medethics-2015-102663
DP  - 2015 Mar 28
TA  - Journal of Medical Ethics
PG  - medethics-2015-102663
4099  - http://jme.bmj.com/content/early/2015/03/30/medethics-2015-102663.short
4100  - http://jme.bmj.com/content/early/2015/03/30/medethics-2015-102663.full
AB  - In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.