RT Journal Article SR Electronic T1 Improving access to medicines: empowering patients in the quest to improve treatment for rare lethal diseases JF Journal of Medical Ethics JO J Med Ethics FD BMJ Publishing Group Ltd and Institute of Medical Ethics SP 987 OP 989 DO 10.1136/medethics-2013-101427 VO 41 IS 12 A1 Les Halpin A1 Julian Savulescu A1 Kevin Talbot A1 Martin Turner A1 Paul Talman YR 2015 UL http://jme.bmj.com/content/41/12/987.abstract AB