RT Journal Article
SR Electronic
T1 Research led by participants: a new social contract for a new kind of research
JF Journal of Medical Ethics
JO J Med Ethics
FD BMJ Publishing Group Ltd and Institute of Medical Ethics
SP 216
OP 219
DO 10.1136/medethics-2015-102663
VO 42
IS 4
A1 Vayena, Effy
A1 Brownsword, Roger
A1 Edwards, Sarah Jane
A1 Greshake, Bastian
A1 Kahn, Jeffrey P
A1 Ladher, Navjoyt
A1 Montgomery, Jonathan
A1 O'Connor, Daniel
A1 O'Neill, Onora
A1 Richards, Martin P
A1 Rid, Annette
A1 Sheehan, Mark
A1 Wicks, Paul
A1 Tasioulas, John
YR 2016
UL http://jme.bmj.com/content/42/4/216.abstract
AB In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.