RT Journal Article SR Electronic T1 Issues of consent and feedback in a genetic epidemiological study of women with breast cancer JF Journal of Medical Ethics JO J Med Ethics FD BMJ Publishing Group Ltd and Institute of Medical Ethics SP 93 OP 96 DO 10.1136/jme.29.2.93 VO 29 IS 2 A1 M P M Richards A1 M Ponder A1 P Pharoah A1 S Everest A1 J Mackay YR 2003 UL http://jme.bmj.com/content/29/2/93.abstract AB Women (N=21) who had had breast cancer and had been enrolled in a large genetic breast cancer epidemiological study were interviewed about their experience of participation in the study, their attitudes to the confidentiality of data, and the feedback of personal and general research results. Collection of family history information seemed more salient in indicating the genetic nature of the study than the enrolment information sheet. There were no concerns about confidentiality. While participants would have welcomed general feedback about the results of the study and were critical that this had not been provided, the feedback of personal information proved complicated and, sometimes, difficult. It is suggested that individual feedback of genetic test information in epidemiological studies should be undertaken only when there are specific reasons.