RT Journal Article
SR Electronic
T1 National symposium on problems of presymptomatic testing for Huntington's disease, Cardiff.
JF Journal of Medical Ethics
JO J Med Ethics
FD BMJ Publishing Group Ltd and Institute of Medical Ethics
SP 41
OP 42
DO 10.1136/jme.16.1.41
VO 16
IS 1
A1 A Tyler
A1 M Morris
YR 1990
UL http://jme.bmj.com/content/16/1/41.abstract
AB Presymptomatic testing for Huntington's disease has given rise to several ethical problems relating to such issues as confidentiality, the privacy of the individual, the testing of minors and informed consent in connection with blood sample donation. A multidisciplinary conference of staff from genetic centres involved with presymptomatic testing was organised in Cardiff to discuss these and other problems. Recommendations on good practice are described under four headings: pre- and post-test counselling; confidentiality in relation to test results; collection and storage of DNA, and criteria for testing.