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Treating infertility as a missing capability, not a disease: a capability approach
  1. Michelle Jessica Bayefsky1,
  2. Arthur Caplan2
  1. 1Obstetrics & Gynecology, NYU Langone Health, New York, New York, USA
  2. 2Division of Medical Ethics, NYU Grossman School of Medicine, New York, New York, USA
  1. Correspondence to Dr Michelle Jessica Bayefsky, Obstetrics & Gynecology, NYU Langone Health, New York, New York, USA; michelle.bayefsky{at}gmail.com

Abstract

Infertility patients and patient advocates have long argued for classifying infertility as a disease, in the hopes that this recognition would improve coverage for and access to fertility treatment. However, for many fertility patients, including older women, single women and same-sex couples, infertility does not represent a true disease state. Therefore, while calling infertility a ‘disease’ may seem politically advantageous, it might actually exclude patients with ‘social’ or ‘relational’ infertility from treatment. What is needed is a new conceptual framing of infertility that better reflects the profound significance of being infertile for many people and the importance of addressing infertility in order to improve their lives. In this paper, we argue that the capability approach provides this moral underpinning. The capability approach is concerned with what people are able to do, and whether they are able to act in a way that is in keeping with their own values and goals. The ability to procreate and build a family is a fundamental capacity and can be a major part of self-fulfilment, regardless of sexual orientation or family arrangement. Since the capability approach asks us to conceive of equality in terms of equal capabilities, it provides a strong ethical impetus for society to help those who cannot conceive on their own to do so with assisted reproduction.

  • ethics- medical
  • fertilization in vitro
  • human rights
  • philosophy

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Footnotes

  • Contributors Both authors helped formulate the outline and basic concepts of the paper. MJB wrote the initial draft, which was edited by AC. MJB is the guarantor, who accepts full responsibility for the finished work.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; externally peer reviewed.

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