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Extending patient-centred communication to non-speaking intellectually disabled persons
  1. Ally Peabody Smith,
  2. Ashley Feinsinger
  1. Department of Medicine, David Geffen School of Medicine, Los Angeles, California, USA
  1. Correspondence to Dr Ashley Feinsinger, Department of Medicine, David Geffen School of Medicine, Los Angeles, California, USA; afeinsinger{at}mednet.ucla.edu

Abstract

Patient-centred communication is widely regarded as a best practice in contemporary medical care, both in terms of maximising health outcomes and respecting persons. However, not all patients communicate in ways that are easily understood by clinicians and other healthcare professionals. This is especially so for patients with non-speaking intellectual disabilities. We argue that assumptions about intellectual disability—including those in diagnostic criteria, providers’ implicit attitudes and master narratives of disability—negatively affect communicative approaches towards intellectually disabled patients. Non-speaking intellectually disabled patients may also be taken to lack decision-making capacity and resultingly, may be given very little role in determining their care. But, given evidence of the heterogeneous communicative practices available to non-speaking patients, efforts should be made to extend patient-centred communication to them. We offer four suggestions for doing so: (1) treating those with non-speaking intellectual disabilities as potential communicators; (2) lengthening appointment times to develop relationships necessary for communication; (3) disentangling capacity from communication in concept and in practice; and (4) recognising the bidirectional connection between supported decision-making and patient-centred communication.

  • Capacity
  • Ethics
  • Decision Making
  • Disabled Persons
  • patient-centered communication

Data availability statement

Data sharing not applicable as no datasets generated and/or analysed for this study.

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Data availability statement

Data sharing not applicable as no datasets generated and/or analysed for this study.

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Footnotes

  • Contributors APS and AF jointly conceived of the paper and the core components of its argument. APS conducted research and led manuscript drafting, and AF provided critical revisions and is the guarantor of the article.

  • Funding This study was funded by NIH Brain Initiative (RF1MH121373).

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; externally peer reviewed.

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