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Limits of advance directives in decision-making around food and nutrition in patients with dementia
  1. Wayne Shelton1,
  2. Cynthia Geppert2,3
  1. 1Alden March Bioethics Institute, Albany Medical College, Albany, New York, USA
  2. 2Department of Psychiatry, University of New Mexico School of Medicine, Albuquerque, New Mexico, USA
  3. 3Department of Internal Medicine, University of New Mexico School of Medicine, Albuquerque, New Mexico, USA
  1. Correspondence to Professor Wayne Shelton, Alden March Bioethics Institute, Albany Medical College, Albany, NY 12208, USA; sheltow{at}amc.edu

Abstract

Advance directives are critically important for capable individuals who wish to avoid the burdens of life-prolonging interventions in the advanced stages of dementia. However, this paper will argue that advance directives should have less application to questions about feeding patients during the clinical course of dementia than often has been presumed. The argument will be framed within the debate between Ronald Dworkin and Rebecca Dresser regarding the moral authority of precedent autonomy to determine an individual’s future end-of-life care plan. We will use a brief analysis of the positions taken in two important papers that come out of the Dworkin/Dresser debate and a hypothetical patient, John, who will be followed from diagnosis of dementia to death, to show how advance directives should apply to key points in the progression of his disease, particularly in relation to food and nutrition.

  • Advance Directives
  • Dementia
  • Ethics- Medical
  • Palliative Care

Data availability statement

Data sharing not applicable as no datasets generated and/or analysed for this study.

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Data availability statement

Data sharing not applicable as no datasets generated and/or analysed for this study.

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Footnotes

  • Contributors WS conceived and wrote this manuscript and accepts full responsibility for this work. CG was an ongoing expert collaborator and made substantive contribution to the final product.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; externally peer reviewed.

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