Article Text
Abstract
The article argues the thesis that institutions have a prima facie obligation to fund the feedback of individual findings in genomic research conducted on the African continent by drawing arguments from an underexplored Afro-communitarian view of distributive justice and rights of researchers to be aided. Whilst some studies have explored how institutions have a duty to support return as a form of ancillary care or additional foreseeable service in research by mostly appealing to dominant principles and theories in the Global North, this mostly normative study explores this question by appealing to underexplored African philosophy. This is a new way of thinking about institutional responsibility to fund feedback and responds to the call to decolonise health research in Africa. Further studies are required to study how this prima facie obligation will interact with social contexts and an institution’s extant relationships to find an actual duty. The research community should also work out procedures, policies and governance structures to facilitate feedback. In our opinion, though the impacts of feeding back can inform how institutions think about their actual duty, these do not obliterate the binding duty to fund feedback.
- ethics- research
Data availability statement
Data sharing not applicable as no data sets generated and/or analysed for this study.
Statistics from Altmetric.com
Data availability statement
Data sharing not applicable as no data sets generated and/or analysed for this study.
Footnotes
Contributors JdV conceived the idea and shared it with CE, who in turn shared it with BB and AW. CE wrote the first draft. JdV, BB and AW significantly revised the draft, enhanced it and suggested new references. All authors revised the draft one more time and did not object to its submission. The authors are equally responsible for the content of the manuscript. CE is the guarantor and accepts responsibility for the overall content of the finished work. CE submitted the article.
Competing interests None declared.
Provenance and peer review Not commissioned; externally peer reviewed.
Read the full text or download the PDF:
Other content recommended for you
- Guideline for feedback of individual genetic research findings for genomics research in Africa
- Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents
- Revealing the results of whole-genome sequencing and whole-exome sequencing in research and clinical investigations: some ethical issues
- Genomic sovereignty and the African promise: mining the African genome for the benefit of Africa
- Taking it to the bank: the ethical management of individual findings arising in secondary research
- Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania
- The best interest standard and children: clarifying a concept and responding to its critics
- An analysis of the African cancer research ecosystem: tackling disparities
- Cancer research across Africa: a comparative bibliometric analysis
- Webinar report: stakeholder perspectives on informed consent for the use of genomic data by commercial entities