Article metrics
PDF
Other content recommended for you
- Participatory governance over research in an academic research network: the case of Diabetes Action Canada
- Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research
- Public preferences towards data management and governance in Swiss biobanks: results from a nationwide survey
- 'It’s not something you can take in your hands'. Swiss experts’ perspectives on health data ownership: an interview-based study
- Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents
- The biobank consent debate: Why ‘meta-consent’ is not the solution?
- Multiple modes of data sharing can facilitate secondary use of sensitive health data for research
- Making consent for electronic health and social care data research fit for purpose in the 21st century
- Comparison of risk factor associations in UK Biobank against representative, general population based studies with conventional response rates: prospective cohort study and individual participant meta-analysis
- The case of biobank with the law: between a legal and scientific fiction