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Clinical ethics
Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence

Authors

  • Shona Kalkman Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands PubMed articlesGoogle scholar articles
  • Johannes van Delden Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands PubMed articlesGoogle scholar articles
  • Amitava Banerjee Farr Institute of Health Informatics Research, University College London, London, UK PubMed articlesGoogle scholar articles
  • Benoît Tyl Cardiovascular Center for Therapeutic Innovation, Institut de Recherches Internationales Servier, Suresnes, France PubMed articlesGoogle scholar articles
  • Menno Mostert Julius Center for Health Sciences and Primary Care, Medical Humanities, University Medical Center Utrecht, Utrecht, The Netherlands PubMed articlesGoogle scholar articles
  • Ghislaine van Thiel Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands PubMed articlesGoogle scholar articles
  1. Correspondence to Dr Shona Kalkman, Medical Humanities, University Medical Center Utrecht, 3584 CX Utrecht, The Netherlands; s.kalkman{at}umcutrecht.nl
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Citation

Kalkman S, van Delden J, Banerjee A, et al
Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
Journal of Medical Ethics 2022;48:3-13.

Publication history

  • Received June 24, 2019
  • Revised October 24, 2019
  • Accepted October 28, 2019
  • First published November 12, 2019.
Online issue publication 
January 10, 2022

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© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.