Article info
Clinical ethics
Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
- Correspondence to Dr Shona Kalkman, Medical Humanities, University Medical Center Utrecht, 3584 CX Utrecht, The Netherlands; s.kalkman{at}umcutrecht.nl
Citation
Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
Publication history
- Received June 24, 2019
- Revised October 24, 2019
- Accepted October 28, 2019
- First published November 12, 2019.
Online issue publication
January 10, 2022
Article Versions
- Previous version (8 January 2022).
- You are viewing the most recent version of this article.
Request permissions
If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.
Copyright information
© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. http://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
Other content recommended for you
- Control, trust and the sharing of health information: the limits of trust
- Conditionally positive: a qualitative study of public perceptions about using health data for artificial intelligence research
- Multiple modes of data sharing can facilitate secondary use of sensitive health data for research
- Consent and the ethical duty to participate in health data research
- Big health data: the need to earn public trust
- Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research
- In response to Ballantyne and Schaefer’s ‘Consent and the ethical duty to participate in health data research’
- Navigating data governance associated with real-world data for public benefit: an overview in the UK and future considerations
- Making consent for electronic health and social care data research fit for purpose in the 21st century
- Should free-text data in electronic medical records be shared for research? A citizens’ jury study in the UK