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Devaluation of persons by biotechnology-facilitated practices at the beginning and at the end of life
  1. Bjørn Hofmann1,2
  1. 1 Department of Health Sciences, Norwegian University of Science and Technology (NTNU), Gjøvik, Norway
  2. 2 Centre for Medical Ethics, University of Oslo, Oslo, Norway
  1. Correspondence to Dr Bjørn Hofmann, Centre for Medical Ethics, University of Oslo, 0315 Oslo, Norway; b.m.hofmann{at}medisin.uio.no

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In this original and interesting article,1 Phil Reed argues that the objections launched against expressivism at the beginning of life do not apply to expressivism at the end of life. Moreover, he claims that the expressivist argument adds to and substantiates the arguments against physician-assisted suicide and euthanasia (PAS/E). In this commentary, I will

  1. Briefly examine whether the comparison between expressivism at the beginning and at the end holds.

  2. Scrutinise whether there is a trickle down-effect of expressivism at the end of life on other arguments against PAS/E.

  3. Examine one version of the expressivist argument that is not discussed by Reed both at the beginning and at the end of life.

Although Phil Reed certainly advances the expressivist debate, it is not clear that the objections to the expressivist argument are so different at the end compared with the beginning of life or that this adds to and substantiates the arguments against physician assisted suicide and euthanasia. Moreover, it is not obvious that the traditional objections to the expressivist argument, for example, that there is no message, no sender, and no receiver, have such a strong bite – neither at the beginning nor at the end of life. Biotechnologies are normative in many ways. We implement them normatively to obtain certain goals. At the same time, they facilitate certain actions and establish practices which form our norms and values, either intended or unintended. In either case, we need to pay attention to them, as they form us as individuals and as societies.

Expressivism at the beginning and end of life

Table 1 shows the three arguments against expressivism that Reed discusses and the problems with these arguments at the beginning of life, as well as why they are not a problem at the end of life according to Reed.

Table 1

Reconstruction of Reeds analysis of three arguments against expressivism, what are the problems with these arguments at the beginning of life and why Reed thinks that they are not a problem at the end of life

Reed assumes that the attitudes at the beginning of life are less explicitly expressed than at the end of life as the reproductive choice may have many motivations beyond the belief that a life with a specific disability is not worth living. At the end of life, PAS/E represents a more explicit assessment: life is not worth living. However, even at the end of life, there may be many reasons for the decision. Moreover, as Reed acknowledges, the expression is not dependent on the intentions of the actors but on the normative function of legislation and actions.

According to the second argument, there is less chance that the autonomy will be undermined at the end of life than at the beginning of life, as one is less dependent on third-party involvement at the end of life. You can choose suicide. However, Reid seems to be wrong in claiming that ‘the right to reproductive control is exercised only with the cooperation of the medical profession’. Following his line of argument, a woman can choose (not) to become pregnant or to take abortion. The latter does not necessarily require help from medical professionals.

The third argument assumes that the actions at the beginning of life are less targeted than at the end of life. According to Reed, preventing the existence of a person is different from ending the life of a person: ‘PAS laws target disabled persons themselves compared with prenatal testing or selective abortion, which targets only potential persons’. However, the relevance of this difference is unclear. What is common both at the beginning and at the end of life is the aim to avoid the life of a person with certain characteristics. Legislative criteria identify the group of persons (eg, with Downs syndrome or specific disabilities), while the actions (eg, abortion or PAS/E) indicate their values. Again, the signal or expression is independent of intention.

Hence, it is not clear that ‘expressivism at the end of life is a much greater concern than at the beginning’. It is still unclear that there is a specific message sent to persons with disability at PAS/E.

No trickle-down effect

Accordingly, it may be difficult to claim that there is a trickle-down effect, that is, that the expressivist arguments make other arguments against PAS/E more serious. According to Reed, ‘if negative attitudes about disabled lives are entrenched or exacerbated, this could make the choice of a disabled person to die even less autonomous than it would otherwise be’. If this is true, then such decisions would not be autonomous, and strictly speaking, PAS/E in such cases would not be legal.

This relates to my next point, that there are expressivist arguments that are more forceful than the one discussed by Reed.

Wrong receiver argument

According to Reed, ‘it is not the case that negative attitudes about disability expressed by prenatal testing will trickle down to embryos or fetuses and cause them to think of themselves as inferior or less valuable’. Certainly, nobody believes that negative attitudes will harm aborted fetuses. The negative attitudes harm existing persons with the condition searched for. The expressivist argument does neither presume intentions of the sender nor there being a specific receiver in the individual instance. Rather, a stronger version of the expressivist argument claims that the sender is the system (in terms of regulations and executing institutions) searching for specific conditions or disabilities; the message is given by the value implicit in the action (abortion or PAS/E); and the receivers are the persons living with this condition.2 For example, what makes us search for and offer abortion for fetuses with trisomy 21 is not our experiences with and devaluation of excessive chromosomes, but our experience with and assessment of existing persons with Down’s syndrome.

Accordingly, the message (‘you are inferior’ or ‘your life is so poor that it is worth avoiding’) is not intentionally sent from individuals making procreative decisions, but from the system implicitly. Moreover, it is clearly not received by aborted fetuses, but by living persons with Down’s syndrome and by society at large. The same goes for the end of life. Hence, the important thing is how specific the eligibility criteria for avoiding/ending life are, not whether it is at the beginning or at the end of life.

Conclusion

Although Reed certainly advances the expressivist debate, more work is needed to ascertain the difference of the argument at the beginning and the end of life and to assert its forcefulness in the PAS/E debate. Moreover, it is not clear that the traditional objections to the expressivist argument, for example, that there is no message, no sender and no receiver, have such a strong bite—neither at the beginning nor at the end of life.

Biotechnologies are normative in many ways. We implement them normatively to obtain certain goals. At the same time, they facilitate certain actions and establish practices which form our norms and values; that is, they are norm-formative. Such norms and values may be intended or unintended. In either case, we need to pay attention to them, as they form us as individuals and as societies.

References

Footnotes

  • Contributors BH is the only author of this commentary.

  • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Patient consent for publication Not required.

  • Provenance and peer review Not commissioned; internally peer reviewed.

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