Article Text
PDFCommentary
From preferences to policies? Considerations when incorporating empirical ethics findings into research policymaking
Statistics from Altmetric.com
Footnotes
Twitter @smorain
Contributors EL and SRM shared equally in conceiving the idea for writing and substantively revising this commentary.
Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.
Competing interests None declared.
Patient consent for publication Not required.
Provenance and peer review Commissioned; internally peer reviewed.
Linked Articles
Read the full text or download the PDF:
Other content recommended for you
- Should free-text data in electronic medical records be shared for research? A citizens’ jury study in the UK
- Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
- How should we think about clinical data ownership?
- Big health data: the need to earn public trust
- Confidentiality and the duties of care
- Conditionally positive: a qualitative study of public perceptions about using health data for artificial intelligence research
- Research using free text data in medical records could benefit from dynamic consent and other tools for responsible governance
- The social licence for research: why care.data ran into trouble
- Control, trust and the sharing of health information: the limits of trust
- Public attitudes to the use in research of personal health information from general practitioners' records: a survey of the Irish general public