Share
Other content recommended for you
- From preferences to policies? Considerations when incorporating empirical ethics findings into research policymaking
- Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research
- Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK
- 'It’s not something you can take in your hands'. Swiss experts’ perspectives on health data ownership: an interview-based study
- What evidence is there for a delay in diagnostic coding of RA in UK general practice records? An observational study of free text
- Patients’ and public views and attitudes towards the sharing of health data for research: a narrative review of the empirical evidence
- Response to commentaries on ‘Should free-text data in electronic medical records be shared for research? A citizens’ jury study in the UK’
- Navigating difficult decisions in medical care and research
- Research using free text data in medical records could benefit from dynamic consent and other tools for responsible governance
- ‘I haven’t met them, I don’t have any trust in them. It just feels like a big unknown’: a qualitative study exploring the determinants of consent to use Human Fertilisation and Embryology Authority registry data in research