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What can the lived experience of participating in risky HIV cure-related studies establish?
  1. Nir Eyal
  1. Correspondence to Professor Nir Eyal, Department of Global Health and Population, Harvard T. H. Chan School of Public Health, Boston, MA 02115, USA; neyal{at}


This response to Gail Henderson et al argues that they were right that interviewees’ appraisals of cure study participation should inform (future) protocol review decisions, but wrong to take these appraisals at face value.

  • Autonomy
  • Clinical Trials
  • Decision-making
  • Ethics
  • Research Ethics

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  • Contributors NE is the sole author.

  • Funding Writing this response was enabled by NIAID grant 1 R01 AI114617-01A1 (HIV cure studies: risk, risk perception, and ethics).

  • Competing interests None declared.

  • Provenance and peer review Commissioned; internally peer reviewed.

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