Footnotes

• Commentary on: ‘Parents perspectives on whole genome sequencing for their children: qualified enthusiasm?’

• Funding Research informing this commentary has been partially supported by a University of Sydney Medical School New Staff Grant: ‘Future autonomy, current technology: ethics and next generation gene sequencing in children’.

• Competing interests None declared.

• Provenance and peer review Commissioned; internally peer reviewed.

• ↵i A side issue, beyond the scope of this commentary, is how studies like the Genome Clinic are contributing to slippage between research and clinical practice as traditionally conceived.

• ↵ii Personal communication, Dr Lisa Dive.

• ↵iii A potential (albeit controversial) modification to this protocol would be to make disclosure of adult-onset SVs in child participants contingent on the child's parents already having consented to such testing for themselves.