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Re: E—forcible feeding, end of life and the anorexic patient
In a recent high profile case1 the Court of Protection authorised the forcible-feeding of a seriously anorexic former medical student with a critically low body mass index (BMI). Without urgent medical treatment, the woman, referred to only as ‘E’, will die. Following four episodes of treatment in specialist eating disorder units and one in an alcohol treatment unit, E, her parents and the professionals involved in her care concluded that all available treatment options had been exhausted. She was transferred to a community hospital for palliative care and put on an ‘end of life’ care pathway. At a late stage her local authority sought court-review of her treatment. The Court of Protection held both that E lacked capacity with regard to her food refusal and that, if it were necessary, forcible-feeding would be in her best interests and therefore lawful.
Although the law relating to the treatment of severely anorexic patients is well established, certain features of this case make it more challenging and arguably more controversial. In assessing E's best interests under the Mental Capacity Act, Mr Justice Jackson undertook a ‘balancing exercise.’ In favour of permitting E to remain on a palliative care pathway he placed the following factors:
It reflects her wishes
It respects her autonomy
It spares her the risks associated with treatment
It avoids the harrowing aspects of treatment
It allows her to die with dignity and close to home
Treatment has limited prospects of success
E's parents and clinicians are at best sceptical about a positive outcome
In favour of forcible feeding he placed the following:
Without treatment she will die
Without treatment she will lose the chance to recover and lead a relatively normal life
There is medical opinion that she is treatable with some prospect of success
The longer she lives, …
Competing interests None.
Provenance and peer review Not commissioned; internally peer reviewed.
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