Poor people predominate as a subgroup of those who take part in healthy volunteer research. They are subjected to minimised but unknown risks and unpleasant burdens so that the safety of new medicines can be evaluated. This is prima facie unfair especially given that the poor are often unable to access expensive medicines. Although participants in this kind of research often do receive compensation for their time, these payments are usually capped at a very low level. This paper defends a version of a reimbursement model for the payment of research subjects. This model is practical, would benefit those without an income who take part in research, and would make it possible for those in regular work to take part in phase 1 research.
Statistics from Altmetric.com
If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.
Competing interests None.
Provenance and Peer review Not commissioned; externally peer reviewed.
Read the full text or download the PDF:
Other content recommended for you
- Payment in challenge studies: ethics, attitudes and a new payment for risk model
- Human infection challenge studies in endemic settings and/or low-income and middle-income countries: key points of ethical consensus and controversy
- Payment of research participants: current practice and policies of Irish research ethics committees
- Cohort profile: the Scottish Research register SHARE. A register of people interested in research participation linked to NHS data sets
- Ethical concerns regarding guidelines for the conduct of clinical research on children
- Should patients be allowed to veto their participation in clinical research?
- An investigation of patients’ motivations for their participation in genetics-related research
- Coercive offers and research participation: a comment on Wertheimer and Miller
- What proportion of patients with psychosis is willing to take part in research? A mental health electronic case register analysis
- Challenge studies of human volunteers: ethical issues