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Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research
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  • Published on:
    Information sheets for research

    Ponder et al add a useful view to the debate about seeking consent in clinical research but it is important to correct their view that guidance for information sheets produced by the National Resarch Ethics Service might be seen as a proscriptive straight jacket.

    The introduction in our guidance states:

    "We provide this document to guide researchers and reviewers alike but there may be times when variation...

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    Conflict of Interest:
    None declared.

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