Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees

Michèle Ramsay; Jantina de Vries; Himla Soodyall; Shane A Norris; Osman Sankoh; aH3Africa Consortium

doi:10.1186/s40246-014-0015-x

Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committees

Hum Genomics. 2014 Aug 21;8(1):15. doi: 10.1186/s40246-014-0015-x.

Authors

Michèle Ramsay^{1

2}, Jantina de Vries³, Himla Soodyall⁴, Shane A Norris⁵, Osman Sankoh^{6

7

8}; aH3Africa Consortium

Affiliations

¹ Sydney Brenner Institute for Molecular Bioscience, University of the Witwatersrand, Johannesburg, South Africa. michele.ramsay@wits.ac.za.
² Division of Human Genetics, National Health Laboratory Service and School of Pathology, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa. michele.ramsay@wits.ac.za.
³ Department of Medicine, UCT Centre for Clinical Research, Old Main Building, Groote Schuur Hospital, Observatory, University of Cape Town, Cape Town, South Africa. jantina.devries@uct.ac.za.
⁴ Division of Human Genetics, National Health Laboratory Service and School of Pathology, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa. hxsood@global.co.za.
⁵ MRC/Wits Developmental Pathways for Health Research Unit, Department of Paediatrics, School of Clinical Medicine, Faculty of Health Sciences, University of the Witwatersrand, Johannesburg, South Africa. shane.norris@wits.ac.za.
⁶ International Network for the Demographic Evaluation of Populations and Their Health in Low- and Middle-Income Countries (INDEPTH), Accra, Ghana. osman.sankoh@indepth-network.org.
⁷ School of Public Health, University of the Witwatersrand, Johannesburg, South Africa. osman.sankoh@indepth-network.org.
⁸ Hanoi Medical University, Hanoi, Vietnam. osman.sankoh@indepth-network.org.

Abstract

This is a report on a workshop titled 'Ethics for genomic research across five African countries: Guidelines, experiences and challenges', University of the Witwatersrand, Johannesburg, South Africa, 10 and 11 December 2012. The workshop was hosted by the Wits-INDEPTH partnership, AWI-Gen, as part of the H3Africa Consortium.

Publication types

Research Support, N.I.H., Extramural
Research Support, Non-U.S. Gov't

MeSH terms

Advisory Committees / ethics*
Africa
Black People / genetics
Congresses as Topic
Genomics / ethics*
Genomics / methods
Humans

Abstract

Publication types

MeSH terms

Grants and funding