Original Investigation: transplantationPatients' attitudes about living donor transplantation and living donor nephrectomy
Section snippets
Participants
We mailed a survey to groups of patients and potential patients who visited the University of Maryland School of Medicine Division of Transplantation between January 1998 and June 2001. The first group consisted of individuals who were considering kidney donation (potential donors). The second group included those individuals who had donated a kidney (donors). The third group comprised patients who needed a transplant and were considering a live donor (potential recipients). The last group
Response rate
Of 665 patients to whom we mailed a survey, 461 (33 potential donors, 40 potential recipients, 184 donors, and 204 recipients) returned the survey, resulting in a response rate of 51%, 51%, 75%, and 74%, respectively.
Demographics
Fifty-four percent of respondents were women, 24% were African-American, and the mean age was 47 years (range, 21 to 86). Nonrespondents were more likely to be African-American (P < 0.01) with a mean age of 44 (range, 19 to 81). Table 1 presents the demographic characteristics of
Discussion
Unlike previous mail surveys on kidney transplantation,30, 31, 32 this study focused on 4 different transplant populations: recipients, potential recipients, donors, and potential donors. High response rates, ranging from 51% to 75%, were obtained with each of these groups. In part, this could be attributed to careful questionnaire preparation and pilot testing as well as the follow-up with nonrespondents. The response rates for potential recipients and potential donors were lower than the
Conclusion
Overall, our results suggest a positive attitude toward living donor kidney transplantation and the laparoscopic donor nephrectomy. With respect to their willingness to accept/donate a kidney, the laparoscopic donor nephrectomy seems to affect recipients and potential recipients more than donors and potential donors. These results suggest that educational interventions regarding the laparoscopic donor nephrectomy should target potential recipients.
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Cited by (68)
Protocol for the AKT-MP trial: Access to Kidney Transplantation in Minority Populations
2022, Contemporary Clinical Trials CommunicationsCitation Excerpt :We will assess KT knowledge using the adapted KT Knowledge Survey [69] and KT Questionnaire [KTQ] [28], and patient perceptions of the clinical encounter with the Client Satisfaction Questionnaire. [70] Also, we will assess KT learning activities (5 items adapted from the KTQ [28]), concerns about transplant (12 items adapted from the KTQ [28]), and attitudes towards LDKT (12 items adapted from Pradel [71] and the KTQ [28]). We will collect demographic data including gender, age, race/ethnicity [72], marital status, SES (education & occupation), income, insurance status, number of potential donors available for matching, and number of actual matches through the T1 interview and medical record abstraction.
Strategies to Increase the Donor Pool
2017, Kidney Transplantation, Bioengineering, and Regeneration: Kidney Transplantation in the Regenerative Medicine EraProtocol of the KTFT-TALK study to reduce racial disparities in kidney transplant evaluation and living donor kidney transplantation
2017, Contemporary Clinical TrialsRobotic nephrectomy for living donation: Surgical technique and literature systematic review
2016, American Journal of SurgeryMistrust, misperceptions, and miscommunication: A qualitative study of preferences about kidney transplantation among African Americans
2015, Transplantation ProceedingsCitation Excerpt :Participants also had concerns related to the donor source. Some were hesitant to accept a kidney from a family member, citing a fear of putting a loved one's health at risk, a concern documented in prior studies [29–33]. This fear is inconsistent with scientific evidence because studies show that risks of donation are extremely low [34].
Supported by a grant from Roche Laboratories Inc.