Varying disclosure policies for the return of secondary findings from a selection of major biobanks and genetic cohort studies
| No return of secondary genetic findings | Will return actionable genetic findings (with opt-in consent) | Undecided/ongoing decision | No publicly disclosed policy on website* |
|---|---|---|---|
| UK Biobank29 | Genomics England23 | eMERGE30 | Icelandic Biobank (DeCode) |
| Million Veteran Program31 | ASPREE Healthy Ageing Biobank4 | US Precision Medicine Initiative32 | BioMe (Mount Sinai) |
| NINDS, National Institute of Neurological Disorders and Stroke Repository,33 | Geisinger MyCode34 | Kaiser Permanente Research Program on Genes, Environment, and Health35 | Welldery |
| BioVU (Vanderbilt University)36 | Genomes2People (G2P) MedSeq Project24 | Framingham Heart Study37 | |
| NUgene (Northwestern University)38 |
*As of August 2016. ASPREE, ASPirin in Reducing Events in the Elderly.