Table 1

Previous research participation of interviewees

Type of research studyNumber
Therapeutic research
    Molecular or DNA research    25
        Familial Breast Cancer Study        11
        Molecular research for rare diseases        9
        Other (BRCA1 and 2)        5
    Chemoprevention trial    9
        CAPP2        6
        RAZOR        1
        IBIS1        2
    Screening study    17
        MARIBS        7
        UKFOCCS        8
        Other        2
Non-therapeutic research
    Epidemiological    18
        POSH        2
        EMBRACE        12
        Other        4
    Psychosocial    11
        Genetic counselling study        4
        Von Hippel–Lindau interview study        4
        Other        3
    Research database    31
        BFCR        29
        UKCCCR Familial Ovarian Register        2

  • BFCR, British Familial Cancer Record; CAPP2, Colorectal Adenoma/Carcinoma Prevention Programme; EMBRACE, Epidemiological Study of BRCA1 and BRCA2 Mutation Carriers; IBIS1, International Breast Cancer Intervention Study; MARIBS, Magnetic Resonance Imaging for Breast Screening; POSH, Prospective Study of Outcomes in Sporadic Versus Hereditary Breast Cancer; RAZOR, Raloxifene and Zoladex Research Study; UKCCCR, UK Coordinating Committee on Cancer Research; UKFOCSS, UK Familial Ovarian Cancer Screening Study.