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Newborn health benefits or financial risk protection? An ethical analysis of a real-life dilemma in a setting without universal health coverage
  1. Kristine Husøy Onarheim1,
  2. Ole Frithjof Norheim1,2,
  3. Ingrid Miljeteig1,3
  1. 1 Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway
  2. 2 Centre for Intervention Science in Maternal and Child Health, University of Bergen, Bergen, Norway
  3. 3 Department of Research and Development, Bergen Health Trust, Bergen, Norway
  1. Correspondence to Dr Kristine Husøy Onarheim, Department of Global Public Health and Primary Care, University of Bergen, Bergen 5020, Norway; kristine.onarheim{at}uib.no

Abstract

Introduction High healthcare costs make illness precarious for both patients and their families’ economic situation. Despite the recent focus on the interconnection between health and financial risk at the systemic level, the ethical conflict between concerns for potential health benefits and financial risk protection at the household level in a low-income setting is less understood.

Methods Using a seven-step ethical analysis, we examine a real-life dilemma faced by families and health workers at the micro level in Ethiopia and analyse the acceptability of limiting treatment for an ill newborn to protect against financial risk. We assess available evidence and ethical issues at stake and discuss the dilemma with respect to three priority setting criteria: health maximisation, priority to the worse-off and financial risk protection.

Results Giving priority to health maximisation and extra priority to the worse-off suggests, in this particular case, that limiting treatment is not acceptable even if the total well-being gain from reduced financial risk is taken into account. Our conclusion depends on the facts of the case and the relative weight assigned to these criteria. However, there are problematic aspects with the premise of this dilemma. The most affected parties—the newborn, family members and health worker—cannot make free choices about whether to limit treatment or not, and we thereby accept deprivations of people’s substantive freedoms.

Conclusion In settings where healthcare is financed largely out-of-pocket, families and health workers face tragic trade-offs. As countries move towards universal health coverage, financial risk protection for high-priority services is necessary to promote fairness, improve health and reduce poverty.

  • family
  • resource allocation
  • neonatology
  • distributive justice
  • decision-making

This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

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Footnotes

  • Contributors The project idea and analysis was developed by KHO, IM and OFN. KHO wrote the first draft of the manuscript and incorporated critical feedback from IM and OFN. All authors read and approved the final manuscript.

  • Funding The study was funded by the Norwegian Research Council (Global Health Priorities 2020 project, no. 218694/H10).

  • Competing interests None declared.

  • Patient consent Not required.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement The study did not include use of primary data.

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