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Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity
  1. Helena Machado1,
  2. Susana Silva2
  1. 1Centre for Social Studies, University of Coimbra, Coimbra, Portugal
  2. 2Institute of Public Health, University of Porto – EPI Unit, Porto, Portugal
  1. Correspondence to Dr Helena Machado, Centre for Social Studies, University of Coimbra, Colégio de S Jerónimo, Largo D Dinis, Apartado 3087, Coimbra 3000-995, Portugal; helenamachado{at}ces.uc.pt

Abstract

The ethical aspects of biobanks and forensic DNA databases are often treated as separate issues. As a reflection of this, public participation, or the involvement of citizens in genetic databases, has been approached differently in the fields of forensics and medicine. This paper aims to cross the boundaries between medicine and forensics by exploring the flows between the ethical issues presented in the two domains and the subsequent conceptualisation of public trust and legitimisation. We propose to introduce the concept of ‘solidarity’, traditionally applied only to medical and research biobanks, into a consideration of public engagement in medicine and forensics. Inclusion of a solidarity-based framework, in both medical biobanks and forensic DNA databases, raises new questions that should be included in the ethical debate, in relation to both health services/medical research and activities associated with the criminal justice system.

  • Genetic Information
  • Government/Criminal Justice
  • Public Policy
  • Rights
  • Social Aspects

This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/

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