Article Text

other Versions

PDF
Paper
Coercion and choice in parent–child live kidney donation
  1. Philippa Burnell1,
  2. Sally-Anne Hulton2,
  3. Heather Draper3
  1. 1Department of Acute Internal Medicine, The Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK
  2. 2Department of Paediatric Nephrology, Birmingham Children's Hospital NHS Foundation Trust, Birmingham, UK
  3. 3School of Health and Population Science, University of Birmingham, Birmingham, UK
  1. Correspondence to Heather Draper, Professor of Biomedical Ethics, Medicine, Ethics, Society and History (MESH), School of Health and Population Science, University of Birmingham, Birmingham B15 2TT, UK; h.draper{at}bham.ac.uk

Abstract

This paper explores whether donor-parents felt coerced to donate a kidney to their child. There is a paucity of UK literature on parental live kidney donors and the voluntariness of their decision-making. Data were gathered as part of a study exploring parental experiences of consenting for live donation at a UK specialist children's hospital. Parents who donated a kidney to their child between September 2006 and December 2010 and who consented at their child's hospital to be referred to an adult unit for consideration for live donation were invited to participate. Of the 19 eligible parents, seven fathers and three mothers consented to be interviewed. Their primary motivation for donation was being a parent (more specifically, the parent of a sick child). Participants expressed this in terms of parental love and concern. Participants conveyed certainty about their decision and viewed live donation as a positive opportunity. Most participants regarded the decision to donate, or not donate, as one every parent is entitled to make for their own reasons. In discussing our findings, we argue that when parents do not separate their child's interests from their own, this does not necessarily compromise autonomous decision-making: using one's own moral values to constrain one's own choices can be compatible with voluntary decision-making. Indeed, choices may be more constrained when parents are unable to donate, because this reduces the options available to parents to help their child.

  • Transplantation
  • Donation/Procurement of Organs/Tissues
  • Family
  • Coercion
  • Autonomy

Statistics from Altmetric.com

Request permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.

Linked Articles