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  • Justification for a home-based education programme for kidney patients and their social network prior to initiation of renal replacement therapy

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Global medical ethics
Paper
Justification for a home-based education programme for kidney patients and their social network prior to initiation of renal replacement therapy
  1. Emma K Massey1,
  2. Medard T Hilhorst2,
  3. Robert W Nette3,
  4. Peter J H Smak Gregoor4,
  5. Marinus A van den Dorpel5,
  6. Anthony C van Kooij5,
  7. Willij C Zuidema1,
  8. R Zietse6,
  9. Jan J V Busschbach7,
  10. Willem Weimar1
  1. 1Department of Internal Medicine, Kidney Transplant Unit, Erasmus MC, Rotterdam, The Netherlands
  2. 2Department of Medical Ethics and Philosophy, Erasmus MC, Rotterdam, The Netherlands
  3. 3Department of Internal Medicine, Sint Franciscus Gasthuis, Rotterdam, The Netherlands
  4. 4Department of Internal Medicine, Albert Schweitzer Ziekenhuis, Dordrecht, The Netherlands
  5. 5Department of Internal Medicine, Maasstadziekenhuis, Rotterdam, The Netherlands
  6. 6Department of Internal Medicine, Nephrology, Erasmus MC, Rotterdam, The Netherlands
  7. 7Department of Medical Psychology and Psychotherapy, Erasmus MC, Rotterdam, The Netherlands
  1. Correspondence to Dr Emma K Massey, Department of Internal Medicine, Kidney Transplant Unit, Erasmus MC, Room D-408, Postbus 2040, 3000 CA Rotterdam, The Netherlands; e.massey{at}erasmusmc.nl

Abstract

In this article, an ethical analysis of an educational programme on renal replacement therapy options for patients and their social network is presented. The two main spearheads of this approach are: (1) offering an educational programme on all renal replacement therapy options ahead of treatment requirement and (2) a home-based approach involving the family and friends of the patient. Arguments are offered for the ethical justification of this approach by considering the viewpoint of the various stakeholders involved. Finally, reflecting on these ethical considerations, essential conditions for carrying out such a programme are outlined. The goal is to develop an ethically justified and responsible educational programme.

  • Kidney transplantation
  • living donor
  • renal dialysis
  • decision making
  • patient education as topic
  • education/programs
  • donation/procurement of organs/tissues

https://doi.org/10.1136/jme.2011.042366

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    Footnotes

    • Funding This project is funded by the Dutch Kidney Foundation (Nierstichting Nederland).

    • Competing interests None.

    • Provenance and peer review Not commissioned; externally peer reviewed.

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