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J Med Ethics 2003;29:165-168 doi:10.1136/jme.29.3.165
  • Original Article

Brain donation for schizophrenia research: gift, consent, and meaning

  1. M Boyes,
  2. P Ward*
  1. Neuroscience Institute of Schizophrenia and Allied Disorders (NISAD), Darlinghurst, NSW, Australia
  1. Correspondence to:
 M Boyes, NISAD Schizophrenia Research, 384 Victoria St, Darlinghurst, NSW 2010, Australia; 
 m.boyes{at}nisad.org.au
  • Accepted 24 January 2003
  • Revised 19 January 2003

Abstract

The Neuroscience Institute of Schizophrenia and Allied Disorders’s (NISAD) “Gift of Hope” Tissue Donor Program is a volunteer programme for people who wish to donate their brain when they die for neuroscience research into schizophrenia. Organ donation for purposes of research differs from transplant donation in a number of ways, most notably the absence of a single recipient. Within a particular community, however, (people with schizophrenia and their carers) the single recipient is replaced by a sense of shared experience and preventing suffering in others. Donors have an investment in the research.

Footnotes

  • * Also School of Psychiatry, University of New South Wales, Sydney, NSW, Australia

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